Videos

The intent of our videos is help you find hope, show you ways to give back, and motivate you to take action. We want to help you experience personal growth through giving. We’ll also bring you along on our journey of what’s it’s like taking care of a family member with special needs. Subscribe to the Livy’s Hope YouTube channel and choose to receive notification so you don’t miss when we post new videos.

Arizona Trip for Hailey's Keynote Speech

It's Time To Change Your Perspective On Life?

Making a Difference Across the USA in 2017

How Epilepsy and Seizures Affect Siblings

Happy New Year 2018!

A Special Needs Day In The Life Of Livy

2017 Paul B. Stephens Walk 'n Roll-A-Thon

President and CEO of the Epilepsy Foundation Kids Crew

National Walk for Epilepsy 2015 Part 5: Hope is Stronger than Epilepsy

National Walk 2015 Part 4: President for a Day

National Walk 2015 Part 3: The Eagle has Landed

National Walk for Epilepsy 2015 Part 2: On the Right Track

National Walk for Epilepsy 2015 Part 1: To The Train!

Livy Using Tobii Eye Gaze 2-15-2016

Livy Opening Tobii Eye Gaze

A Father's Promise: Making A Stand Against Epilepsy

Hospice Gala 2015

A Family's Mission for Epilepsy Research

Opening Minds And Hearts Award 2014

Imagine A Cure For Epilepsy

Livy's Hope For An Epilepsy Cure: I Am Hope

8 Year Old Captures Hearts At 2013 WEDU Awards

I Am Hope: Live From Miami

Hailey's True Talent

My Olympic Dream

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  Arizona Trip for Hailey's Keynote Speech

  In September, we took a trip to Arizona where Hailey had her first solo keynote speech at the Epilepsy Foundation of Arizona's Waves of Change for Epilepsy gala. It was an adventure from start to finish. Her important message is do something that can change the world. So get out there and start today! For more information, visit LivysHope.com. #DontGiveUpGiveBack
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  It's Time To Change Your Perspective On Life?

  Livy has changed our perspective on life. She helped us to take a different path, a one of meaning and purpose. We all have a choice. Choose to do something you love and that has purpose!
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  Making a Difference Across the USA in 2017

  In 2017, we worked to impact our local community and also traveled around the country participating and speaking at events. Here is a recap of some of the places we visited and what we did to make a difference.
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  How Epilepsy and Seizures Affect Siblings

  You will see that Livy's experience has greatly impacted Hailey. Our lives would be significantly different if epilepsy and seizures were not a part of it. We are forever balancing what could have been with what life has handed Livy. It is a tortuous process that has no end. It is raw emotion we try to keep hidden. It constantly lurks just beneath the surface ready to show itself. Hailey wanted to express a small piece of that emotion and how what she has seen makes her feel. As she states, "This has to stop!" It is known that epilepsy affects the entire family. We can attest to that statement with 100% accuracy. This video is from three years ago. Livy had a strong seizure that Hailey witnessed and then she wanted to talk about how she felt watching Livy. It is one of those things you put away and hope to forget about because as a parent, it is heartbreaking. But Livy continues to go through difficult times with seizures especially recently. We felt it was more relevant now than ever. As Hailey gets older, she understands more and more about Livy's condition and how serious it is. As much as she does to help Livy and the epilepsy community, she knows that more needs to be done.
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  Happy New Year 2018!

  Wishing everyone a happy, healthy, and wonderful 2018!
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  A Special Needs Day In The Life Of Livy

  This video is a day in the life of Livy. I filmed it when Allison and Hailey were away. Many have wondered how our lives work. Well, this will show you much of what we have to do to make it work. I am dedicating it to all of the fathers and mothers who give everything of themselves to ensure their special kids live the best lives they can. It goes without saying that the most treasured present I have ever received, aside from marrying my best friend, was the gift of Hailey and Livy. I just hope, as many parents do, that I am worthy of this amazing responsibility and incredible blessing. Sending you all much love and the greatest of respect.
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  2017 Paul B. Stephens Walk 'n Roll-A-Thon

  Livy's school, Paul B Stephens will be having their annual Walk 'n Roll-A-Thon at the end of February. The students will be supporting this fun event and helping to raise money for the school's PTA. The money raised helps to fund family social events, the school prom, classroom supplies and other PTA projects. To reward students for doing a good job during the Walk 'n Roll-A-Thon, Livy's Hope and Fran Haasch Law Group are working together to provide the PTA with additional funding. Our Livy's Hope goal is $500 which the Fran Haasch Law Group has generously offered to match! Any money left over after the students are rewarded will go toward other PTA sponsored events
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  President and CEO of the Epilepsy Foundation Kids Crew

  At the 2016 National Walk for Epilepsy reception, 11-year-old Hailey was introduced as the President and CEO of the Epilepsy Foundation's new Kids Crew. It was an amazing evening filled with hope and inspiration. Hailey is honored to be serving in this role and looks forward to making an even bigger difference in the lives of kids across the country. For more information about the kids crew and how your child can get involved, please visit www.epilepsy.com/kids-crew.
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  National Walk for Epilepsy 2015 Part 5: Hope is Stronger than Epilepsy

  Here is the 5th and final part of our journey to the National Walk for Epilepsy In April 2015 in Washington, DC. It is appropriately named "Hope is Stronger than Epilepsy" and was the theme of Hailey's speech in front of thousands. We are packing our bags and getting ready to head to the 2016 Walk on April 16th where a new journey awaits. It is one that will change our family once again and connect us even further to the epilepsy community.
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  National Walk 2015 Part 4: President for a Day

  In April 2015, we attended the National Walk for Epilepsy in Washington DC. It was the first time we have traveled together as a family outside of Florida since 2007. We went to support the epilepsy community, for Hailey and Livy to be Presidents for a Day of the Epilepsy Foundation and to launch Lemonade for Livy 2015. This is Part 4 of our trip and is the day Hailey and Livy were Presidents!
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  National Walk 2015 Part 3: The Eagle has Landed

  In April 2015, we attended the National Walk for Epilepsy in Washington DC. It was the first time we have traveled together as a family outside of Florida since 2007. We went to support the epilepsy community, for Hailey and Livy to be Presidents for a Day of the Epilepsy Foundation and to launch Lemonade for Livy 2015. This is Part 3 of our trip.
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  National Walk for Epilepsy 2015 Part 2: On the Right Track

  In April 2015, we attended the National Walk for Epilepsy in Washington DC. It was the first time we have traveled together as a family outside of Florida since 2007. We went to support the epilepsy community, for Hailey and Livy to be Presidents for a Day of the Epilepsy Foundation and to launch Lemonade for Livy 2015. This is Part 2 of our trip.
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  National Walk for Epilepsy 2015 Part 1: To The Train!

  In April 2015, we attended the National Walk for Epilepsy in Washington DC. It was the first time we have traveled together as a family outside of Florida since 2007. We went to support the epilepsy community, for Hailey and Livy to be Presidents for a Day of the Epilepsy Foundation and to launch Lemonade for Livy 2015. This is Part 1 of our trip.
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  Livy Using Tobii Eye Gaze 2-15-2016

  We are so happy to see Livy using her Tobii Dynavox Eye Gaze system! We are amazed at this technology and the potential it has for communication. Livy will need plenty of time to practice but who knows what she will be able to do with it in the future.
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  Livy Opening Tobii Eye Gaze

  Livy received an amazing gift from Adrian Paul and the Peace Fund. They raised money for a Tobii Eye Gaze technology system to allow her to use her eyes to make selections on a screen. In the future, it has the potential to help her communicate more than she ever has. We are grateful for all those who contributed to this wonderful gift of hope.
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  A Father's Promise: Making A Stand Against Epilepsy

  I have watched Livy endure 10's of thousands of seizures. I have felt helpless time after time. But I made her a promise that I would never stop fighting for a cure for epilepsy. That promise has been brought to life in Lemonade for Livy, a unifying call to work together to fund research and to make a stand against epilepsy. To find out more or to register your lemonade stand or party for Lemonade for Livy 2015, please go to www.livyshope.com/lemonadeforlivy. #lemonadeforlivy
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  Hospice Gala 2015

  In 2005, Livy spent 5 months at the Woodside Hospice House in Pinellas Park, FL. The hospice team was an unending source of support and we are grateful for all they did for our family. We were honored to speak at the Suncoast Hospice Gala in February 2015 to share our story.
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  A Family's Mission for Epilepsy Research

  Lemonade for Livy is our way of making a stand against epilepsy. All proceeds go to the Epilepsy Foundation to support research to find a cure.
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  Opening Minds And Hearts Award 2014

  On March 22, 2014, we attended the Powerstories Theatre Gift Of Story Gala. Hailey won an Opening Minds & Hearts Award for her dedication to her sister Livy and all she does for Livy's Hope. We were honored to be with such an amazing group of people.
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  Imagine A Cure For Epilepsy

  Livy's Hope is hosting an event called Imagine A Cure to raise money for the Epilepsy Foundation to fund research for a cure.The theme is Willy Wonka. In this video, Hailey tells her story of why it is so important to find a cure.
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  Livy's Hope For An Epilepsy Cure: I Am Hope

  Livy's Hope is sponsoring a fundraising campaign named Livy's Hope For A Cure. Our goal is to raise $1 million for the Epilepsy Foundation so they can fund research to find a cure for epilepsy. Update...3 years later, our campaign is now called Lemonade for Livy and has reached every state around the United States as well as multiple countries.
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  8 Year Old Captures Hearts At 2013 WEDU Awards

  Hailey was awarded the 2013 WEDU Be More Inspiring - Rising Star Award on February 21, 2013. Thank you to WEDU, the person who nominated her and all those that voted for her along the way.
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  I Am Hope: Live From Miami

  We traveled to Miami to watch Carmen Magro and his band perform I Am Hope live at the AmericanArlines Arena. It was a wonderful experience and one we will never forget. Carmen is a big supporter of Livy's Hope and is donating proceeds from downloads of I Am Hope to Livy's Hope. This video details our trip and what it was like to hang out with the band.
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  Hailey's True Talent

  Hailey playing guitar and singing Happy Birthday to Livy's classmate Georgie.
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  My Olympic Dream

  Watch Olivia during her physical therapy. She has the heart of an Olympic athlete and inspires us all.

Everyone Can Be A Hero

Motivational Moment: Perseverance

Motivational Moment: An Open Mind

Motivational Moment: Make it Happen!

Motivational Moment: There is Good in Every Day

Motivational Moment: Family

Motivational Moment: Be Inspired

Motivational Moment: Begin Your Journey

Motivational Moment: Dedicate Time

Motivational Moment: Always Do Your Best

Make A Stand - Who Will You Inspire?

Inspiring video: Don't Give Up. Give Back.

Time Lapse Painting of Flowers Of Hope

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  Everyone Can Be A Hero

  Hailey had an amazing time working with the heroes to plan, write, and organize this video which Marvel is also releasing later today. These kids are inspiring, and are passionate about making the world a better place. They want you to know that, “We are the members of Marvel's #HeroProject, and we believe that everyone can be a hero. No matter who you are, you CAN make a difference! You have seen the work that we have done, and now, we are asking you to help change the world for the better!” #DisneyPlus Please share to help them get their message out and to spread hope!
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  Motivational Moment: Perseverance

  Hailey is here with another Motivational Moment. Keep working at something and never give up until you accomplish what you set out to do. Eventually, you will reach your goal...that's perseverance! For more information, visit livyshope.com #MotivationalMoment #DontGiveUpGiveBack
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  Motivational Moment: An Open Mind

  Hailey is here with another Motivational Moment. A mind is like a parachute...it works better when it's open. Be accepting of others and respect them for who they are. You will put a smile on someone's face and help the world become better! For more information, visit livyshope.com #MotivationalMoment #DontGiveUpGiveBack
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  Motivational Moment: Make it Happen!

  Hailey is here with her Motivational Moment for the week. "It always seems impossible until it's done," said Nelson Mandela. If you have a dream and belivee in it, don't let anything stand in your way. So go out there and make it happen! For more information about Livy's Hope, visit us at livyshope.com.
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  Motivational Moment: There is Good in Every Day

  Hailey is here with her Motivational Moment for the week. "Every day may not be a good day, but there is good in every day." That's her message. It's really important to find positivity even in the darkest times. Always look for the light! For more information about Livy's Hope, visit us at livyshope.com.
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  Motivational Moment: Family

  Hailey and Livy are here with their Motivational Moment for the week. Spending quality time with family is very important in our house. It's not just time together...it's asking questions, listening, and bonding. There are far too many distractions in today's world that can interfere with relationships. Make a conscious effort to plan dedicated time with the ones you love. For more information about Livy's Hope, visit us at livyshope.com.
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  Motivational Moment: Be Inspired

  Hailey is here with her Motivational Moment for the week. Inspiration can help you accomplish great things. We are often inspired by family, friends, or an experience. What inspires you to make a difference? For more information about Livy's Hope, visit us at livyshope.com.
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  Motivational Moment: Begin Your Journey

  Hailey is here with her Motivational Moment for the week. Every journey begins with a single step. What will it take for you to begin yours? For more information about Livy's Hope, visit us at livyshope.com.
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  Motivational Moment: Dedicate Time

  Hailey is here with her Motivational Moment for the week. Dedicate time and love to the people and passions you care about. It will help them grow and as a result, you will grow, too! For more information about Livy's Hope, visit us at livyshope.com.
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  Motivational Moment: Always Do Your Best

  Every week, we'll be doing a Motivational Moment to get you inspired. This week, Jon and Hailey talk about always doing your best! For more information about Livy's Hope, visit www.livyshope.com.
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  Make A Stand - Who Will You Inspire?

  Hailey inspires with her latest video discussing what it means to Make A Stand. She makes a stand for Livy and all those struggling with epilepsy.
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  Inspiring video: Don't Give Up. Give Back.

  If you ever find yourself in a situation where all appears lost or you don't think you can take any more or your emotions overwhelm you, "Don't Give Up." Instead, turn to helping others and making a difference. Do everything you can to "Give Back." Your life will be changed forever. In this video, Hailey inspires us all to follow this path.
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  Time Lapse Painting of Flowers Of Hope

  Here is a time lapse video of eight year old Hailey painting her very own Flowers Of Hope.

Giving Back To Support Local Organizations

Dont Give Up. GiveBack. - We're In This Together!

How To Make A Ronald McDonald Collection Box

How To Make A No Sew Fleece Blanket

Collecting For The Ronald McDonald House

Smile Train Fundraising

Making A Difference

Giving Back

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  Giving Back To Support Local Organizations

  During these challenging times, consider giving back to the organizations that are making a difference in your community. In February, we attended the WEDU Public Media Be More Awards where Hailey got to announce one of the awards that are given to local nonprofits and people making an impact. We are grateful for the amazing work these organizations do to make lives better. We encourage you to give your time, talents, and funds in whatever way is meaningful to you. Profits through May 7, 2020 from the sale of Hailey's "We Are In This World Together" items found at https://livyshope.threadless.com/desi... will be donated to Feeding Tampa Bay. #DontGiveUpGiveBack
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  Dont Give Up. GiveBack. - We're In This Together!

  Hailey and I are trying to spread optimism and positivity during this difficult time. It's what we do in the most trying times that defines us. Each of us has the potential to help others. Do what you can to spread hope and make a difference. We're all in this together! DontGiveUpGiveBack!
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  How To Make A Ronald McDonald Collection Box

  The goal of the "Fill The House That Love Built" initiative is to collect wish list items for a Ronald McDonald House near you. Watch this video to learn how to make your own collection box! There are 365 houses around the United States and across the globe. They provide a way for families to stay together while their children are being treated at nearby hospitals. We would love to have you join us to support this amazing organization that has helped our family and many, many others through the years. To get involved, email us at info@livyshope.com and also visit https://livyshope.com/index.php/givin.... Thank you! #DontGiveUpGiveBack
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  How To Make A No Sew Fleece Blanket

  We had a wonderful time making no sew fleece blankets for Hailey and Livy's birthday party and delivering them to our local pediatric hospice. The blankets will be given to the kids when the hospice team holds birthday parties for them. This was a meaningful project and one that was fun to do together. Hailey and I wanted to show you how the blankets are made. Visit livyshope.com to see more. #DontGiveUpGiveBack
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  Collecting For The Ronald McDonald House

  Hailey and Livy are collecting items for the Ronald McDonald House of Tampa Bay. For March and April, they are gathering toiletries to help the families staying at the houses.
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  Smile Train Fundraising

  Hailey has decided to raise money for Smile Train. She was looking through a magazine and came across Smile Train. Smile Train provides free surgeries to children born with clefts. A few hundred dollars is all it takes to change a child's life. She has been saving for a little while now and decided to start making posters to hang around the house. Her enthusiasm is truly infectious. For more information about Smile Train, please visit www.smiletrain.org.
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  Making A Difference

  Donating bracelets to All Children's Hospital in St. Petersburg, FL.This is Livy's Hope first initiative to give back to others and to make a difference.
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  Giving Back

  This is our first project to give back. Our mission is to inspire hope in the lives of sick and disabled children and their families.

Coming Soon!