Livy's Hope Blog

Welcome to the Livy's Hope Blog!

I Am Livy

We would like to extend a big welcome to our new friends that attended our presentation at the Family Café Conference on June 16th in Orlando. Thank you so much for taking the time to listen to what we had to say.

I don’t know what it feels like not to be able to speak or to communicate how I am feeling. What if I was in distress but couldn’t tell anyone where it hurt? What if I was hungry or thirsty but couldn’t form the words food or water. What if I simply wanted to say thank you or I love you but my body didn’t allow me to vocalize it or use sign language to express it?

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Recent Comments
Guest — Paige
Ivan and I love this video. We feel Livy's strength and hope when watching it and we know how incredible her family already is---... Read More
Tuesday, 19 June 2012 09:52
Guest — Carol Lee
So beautiful, it moved me to tears. many hugs, Carol
Tuesday, 19 June 2012 10:38
Guest — Joanna Cavanaugh
I appreciate all your beautiful videos and to see what ALL of you have done,not just for Livy ,but for all of us only able to view... Read More
Thursday, 21 June 2012 20:29
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A Petal's Wish Bracelet Auction

Hailey has created another bracelet in support of Livy's therapies. She finished beading the bracelets requested as a result of the Bay News 9 interview and got right down to something new. Please click here to bid on "A Petal's Wish". We are working on a video to show Livy in action during her last therapy session so stay tuned. Thanks so much for following Livy on her journey.

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Video of Hailey and Livy On Bay News 9 June 4, 2012

Here is the Everyday Hero video of Hailey and Livy on Bay News 9 for those of you who were not able to see it. Allison and I had such a wonderful day and we were so humbled by the outpouring of support.

Hailey also had a great day. She was able to watch the video on TV in her classroom with her friends. I still don't think she completely understands the significance of all she has done. As she says in the video, she does it because she loves her sister. Her devotion at such a young age is amazing and she wears the title of hero with grace and humility. We can only hope that as she gets older, she continues to exemplify the qualities she has exhibited toward Livy thus far.

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Recent Comments
Guest — Paige Spencer
We always turn on channel 9 when getting ready in the morning. Yesterday, I flipped on the TV and there was Hailey! She brought ... Read More
Tuesday, 05 June 2012 06:07
Guest — Melanie Quinton
I am so thankful to have come across your story. I love to open my email and see an update to the blog! Thanks for making my day a... Read More
Tuesday, 05 June 2012 08:25
Guest — Carol Lee
I'm so happy about the recognition for Hailey and your family and, of course, for sharing her story with others who may want to he... Read More
Tuesday, 05 June 2012 09:47
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