Will You Stand With Us?
This past week, we sent out an email to family and friends. I thought it was important to share since many of you have been following our story from the very beginning. For years, we have watched Livy struggle with epilepsy. We have shed many tears and experienced tremendous heartache as she courageously fought through episode after episode and multiple surgeries. In the end, what Livy needs is a cure.
If you have ever wondered if there is some way to assist Livy and our family, the answer is yes. Lemonade for Livy is our first national event and we need your help. Please continue on to see what it is all about.
Thank you so much for following our journey!
Dear Family and Friends,
Please take a moment to read this. As many of you know, our Livy has epilepsy. She is one of the 3 million Americans and 65 million people worldwide struggling with the disorder. She has been through more in her short life than most of us will go through in a lifetime.
For nine years, we have watched her glowing smile disappear for days and even months at a time as we lost control of her seizures. She has spent over a year of her life in the hospital and months recovering from those stays as a direct result from epilepsy. Sadly, 50,000 people die each year because of epilepsy or as a result of having a seizure. That thought is never far from our minds.
Livy has inspired many with her determination and her will to live. The reason Livy’s Hope exists is because of her. We are doing all we can to use what we have learned to make a difference in the lives of other. But in the end, Livy needs help too. The only way to truly help her is to find a cure.
The good news is that you can help. Our most recent project, Lemonade for Livy, is a national campaign taking place July 25 - 27 to raise money for epilepsy research.
Here is how you can participate:
1. Hold a lemonade stand or a party. Set up a lemonade stand in your neighborhood, in front of a business, at a sporting event, parade or yard sale. Build a creative/themed stand to attract attention. Hold a stand where you work. Hold a lemonade/lemon themed party at your house. Invite your friends and ask them to make a donation (this is good for both kids and adults).Try to incorporate at least one element of purple (the color for epilepsy awareness). Make flyers and hand them out to family, friends and co-workers. Register your lemonade stand or party at http://www.livyshope.com/index.php/giving-back/lemonadeforlivy. All proceeds will go to the Epilepsy Foundation to support their mission of finding a cure. As you can see from the attached image, we are trying to involve every state.
2. Spread the word. Please share this email with at least 10 others. 1 in 26 people will develop epilepsy in their lifetime so it is highly likely that you already know someone with the disorder. Please let your friends know how easy it is to help. Let’s use the power of social media to reach as many people as possible.
3. Learn more. Please visit www.LivysHope.com to learn more about Livy and all she has endured. You can visit the Livy’s Hope Facebook page (facebook.com/livyshope) to see how Livy and her twin sister Hailey have inspired others. To learn more about epilepsy, please visit the Epilepsy Foundation website at www.epilepsy.com.
We write this to you as parents who would do anything possible to help their daughter. Our worst nightmare is that someday, Livy will be taken from us because of a seizure. We are asking for just a few hours of your time and effort to help Livy and families around the world who fight against epilepsy everyday. Please consider participating in Lemonade for Livy and help us make a stand against epilepsy.
With much appreciation,
Jon and Allison Scheinman
I am so impressed ! Heartfelt We will stand behind your family. We have just gone through the nightmare of uncontrolled epilepsy with my 2 year old nephew.TJ. He had 70% of his brain removed and is seizure free ! Love and hope to Livy ! We are now a year later and he is thriving! Feel free to contact us for support ! we had to go to Detroit Michigan from Ireland to one of the best Neurology surgeons that I have ever met.I am an RN in NY