Pedis, Hips and CBD
A long overdue update on our little sweetheart.
The past few months have been pretty stable for Livy. She continues to have some rough patches but they are short lived and manageable. We can't believe the girls turned nine in December. And with each year comes new challenges. As Livy grows, it becomes more difficult for her to keep up with the weight of her body. This makes the task of trying to sit up a big feat. We continue to encourage her to use her arms to hold her up but she resists using her left arm and hand. To this day, the only thing she will hold onto in that left hand is another hand or finger. Maybe just the human touch is all she prefers (or all that she can tolerate).
We found out a while back that Livy's left hip had dislocated. This is something that happened over time and we were told could very possibly occur. She does not walk or weight bear for extended periods of time so her hip socket did not develop correctly to hold the hip bone. Up until recently, she did not show any signs of discomfort. We were told to look for any changes. A month or so ago we started to notice tightening and that she would guard her left leg. She also has little startles from time to time that may or may not be due to pain or seizure related. So, we took her to the orthopedic doctor this week and had her checked.
The hip still looks relatively the same. The doctor pointed out again where the bone should sit in the socket and it amazes us to see it floating further out to the side. He told us that there are people with two dislocated hips that are walking around without pain. Pretty incredible. We are going to continue to watch her and keep up with stretching and range of motion. Surgery is not an option for her at this point, or at least not what we want for her. There is some risk with pelvic tilting now that only one hip is out. Nature will do what it will. We will just continue to do what we can for her and make her comfortable.
Another big story we are following is that of the legalizing of medical marijuana. It will appear on the November ballot here in Florida and we are very hopeful for this option for Livy. The side effects of the medications she is on are extensive. We especially do not know what they will do to her long term. In the short term, we have had to medicate her with other drugs to control the effects of the seizure drugs. She has not spent one day of her life off of a seizure medication. We have no way of knowing how they make her feel and can only guess. A particular type of medical marijuana, Charlotte's Web, has very little THC (the primary component that produces the high) but it does have very high amounts of CBD which has shown to control seizures. To learn more, please CLICK HERE.
Livy continues to do well in school and has been attending more regularly. Her sleep has improved for the most part and that allows her to be more alert in the mornings. Yesterday, I saw that the school had called. I immediately worried but was surprised to find out they were calling to see if they could paint her toe nails. Her first pedicure. I smiled and happily agreed looking forward to seeing what color she would choose.
Your updates are wonderful - informative and upbeat. God placed your two special daughters perfectly when He chose you and Jon.
Thank you both for sharing this wonderful update. I will vote as long as I have to for the legalization of medical marijuana because I have full faith it will help. As always, sending you all a lot of love, blessings, and Hope.
Thank you so much for the update! I love hearing how she is doing! As always, I will continue to think of her and pray for her. I am so grateful to you for making the decision to share her with the rest of the world. She is such a wonderful gift! When I see pictures of her my heart just opens up! She teaches me so much about love and compassion and reminds me that in the end the only thing that really matters is kindness. I love you, Livy!
I'm always so glad to hear from you. Glad to know things are on the calm side, except for the hip--poor sweetie. I hope the marijuana will end up working well for Livy. Hi and hugs to you all! We're returning to FL Feb. 3, hoping to see you some time this winter! hugs,