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One of Those Days

Today was going to be a better day. Hailey and I are both feeling better now finally getting over a stomach bug. I was rushing around trying to get myself and the girls ready to go. Hailey was staying home from school one more day and I was going to drop her off with my parents.

We found out that Livy was getting the Student of the Month award today at the school assembly! I was excited about bringing her in and watching her go up to get it. Just as we were about to leave, I noticed Livy was starting a seizure. No, not now Liv. I waited to see if it would stop and tried calming her down and maybe get her to fall asleep. Sometimes that helps to stop the cycle. But, no luck. I had to give her some medication to stop it and she finally fell asleep.
I felt so sad, so disappointed, so angry. Most days when she is having a seizure I can accept it and move on. Some days are different though. I just wanted today to be a special one. Why couldn't it just be normal? I was a mom just looking forward to a special day for my daughter.
Our family has learned to be very flexible. Each day is a mystery around here. We never know what to expect. Jon told me that our life isn't just the norm - one that goes on at a normal, not so thrilling pace - but one with great highs and lows. I asked Hailey if it ever bothers her, the way our life is different. "It's not different to me", she says. She put her little arm around me and said, "Isn't it cute how Livy is snoring right now?". I just smiled.
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Comments 3

Guest - Paul Draper on Wednesday, 25 April 2012 12:29

Allison & Jon,
Your note today touched my heart, and I just wanted to let you know how much Betsy and I admire you both for the strength and love you show your girls every day. I'm sorry Livy couldn't be there for her special day, and I know how disappointed you must be. Your life will never be "ordinary", but it is extraordinary. You guys are an inspiration to everyone who knows you, and while I know that doesn't make the bad days go away, I hope it makes them more bearable knowing how many other people's lives you have touched and moved. Love to you and the girls and God Bless -- Paul Draper

Allison & Jon, Your note today touched my heart, and I just wanted to let you know how much Betsy and I admire you both for the strength and love you show your girls every day. I'm sorry Livy couldn't be there for her special day, and I know how disappointed you must be. Your life will never be "ordinary", but it is extraordinary. You guys are an inspiration to everyone who knows you, and while I know that doesn't make the bad days go away, I hope it makes them more bearable knowing how many other people's lives you have touched and moved. Love to you and the girls and God Bless -- Paul Draper
Guest - Carol Lee on Wednesday, 25 April 2012 16:37

Allison, I'm so sorry that Livy's special day didn't end as planned, but I have to say that SHE made MY day when we visited you. There is a vibrancy inside her, especially when she and Hailey are side by side...and I'd guess there are few on the planet who are as vibrant as Hailey! lots of hugs, Carol

Allison, I'm so sorry that Livy's special day didn't end as planned, but I have to say that SHE made MY day when we visited you. There is a vibrancy inside her, especially when she and Hailey are side by side...and I'd guess there are few on the planet who are as vibrant as Hailey! lots of hugs, Carol
Guest - Diane Scheinman on Wednesday, 25 April 2012 19:03

Big hug to you, Allison, a mother who just wanted to share in a special day for her daughter. The day ended up being special because you shared the unique and special circumstances with all of us, especially the part when Hailey brought it all into prospective and remarked how cute her sister, Livy, is when she snores. Amazingly you knew just what to do to bring Livy out of her seizure and into calm. We marvel at how you balance it all! Lots of love and many heartfelt hugs, Diane

Big hug to you, Allison, a mother who just wanted to share in a special day for her daughter. The day ended up being special because you shared the unique and special circumstances with all of us, especially the part when Hailey brought it all into prospective and remarked how cute her sister, Livy, is when she snores. Amazingly you knew just what to do to bring Livy out of her seizure and into calm. We marvel at how you balance it all! Lots of love and many heartfelt hugs, Diane
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Tuesday, 22 September 2020

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