My Least Favorite Three Digits
Today started out a little rough. Livy has been having some breakthrough seizures coming out of sleep in the early mornings. No rhyme or reason...they are just showing their ugly faces again. We can usually tell what type of day she is going to have based on the amount and size of her smiles :) This morning, not so many and not so big.
The rain was coming down pretty hard and I debated about taking her to school. She was now awake and alert and I took the chance and took her in. Dropping her off, I said to her, "Now you behave sweetie...mommy doesn't want any phone calls today." Let's just say, she had other plans.
It's those three digits that I don't particularly like to see come up on my phone. The moment I see them, I get a little pit in my stomach. On some occasions, they are calling to just ask a question. The school's staff is so good to say right away "she's fine". Then I breathe a little sigh of relief and go on my way. Then, there are the calls like today's.
I was in the lower level of the mall close to our house trying to return something but having the most difficult time. I stood waiting for 10 minutes or so for the cashier to figure it out. The people in line behind me were starting to shift back and forth...boring little holes into us with their eyes. And then it happened, the phone rang and those three numbers popped up.
"Hello?" I said. And there was silence. Oh no, of course there is no reception in that lower part of the mall. I knew I had to get out of that store and quick to be able to get reception. Needless to say, the return never happened and I grabbed my stuff and ran. I can only imagine what the people behind me were thinking. Once out of the store I could hear the conversation. Livy was just finishing one seizure and starting up on another. I can't tell you how many times I've received this call. I went into planning mode and hurried myself out to the parking lot and to the house. I needed her meds quickly and it was an 8 minute drive to the school from home.
Luckily, times like these are not complete emergency situations. Livy is in little danger during these episodes but we want to stop them from continuing. My days tend to take a 180 turn after these phone calls. Flexibility is key in our situation and we've learned to bend with the wind.
The staff at Livy's school know her just about as well as we do and they make the best call every time. I always have to be on my toes, ready, at any possible moment, in any situation, to come to the rescue.
I'm telling you, Anna and Livy are having a similar time. I remember they both went through this in the fall and here we are again in the spring. We have lost control too. The days are long and stressful but I know that they will pass. Give Miss Livy hugs from us!
I know first hand how incredible you are in these situations--you are AMAZING!!!!!
(PS--did you ever get throught to Amanda Dean at Children's?)