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Lucky Friday The 13th

Lucky Friday The 13th

I am still amazed by the fact that it only takes a simple smile or a kiss to bring me back to when Allison and I first met. After 15 years of marriage and a total of 18 years together, it is easy for one to forget what it was like all those years ago. But we like to keep those memories alive. We still reminisce about what we did before having kids. What did we do with all our free time? Life was so simplistic back then. But what we realize is that our lives now are much more full of love and purpose than we ever thought possible.

This year has been especially crazy. Just living life, working and Hailey and Livy’s daily schedule (especially all Livy’s doctor’s appointments and therapy sessions) can be hectic. But we have also been running our Livy’s Hope For A Cure campaign along with our regular Livy’s Hope work. Not to mention, our house has been undergoing renovations to make it more handicap accessible. Allison has often said that if we don’t kill each other by the time this is all done, it will be a miracle. As we are finding out, it takes an amazing commitment to run a six month fundraising campaign.

But after the numerous late nights and zombie like days, I feel a closeness to Allison I have never felt. She doesn't know how beautiful she is after she has had only four hours of sleep. There is something truly special about working on a project together that we are both so passionate about.

My parents like to say, “Make sure you get your sleep” and “Don’t burn the candle at both ends.” I understand their concern and I am sure we will say the same things to Hailey when she gets older. Funny thing is we already say this to Livy when she is up into the early hours of the morning. Many people have said, “I don’t know how you have time for all that.” It is difficult to put into words how Allison and I do what we do. There are some nights we have to turn all of our devices off and step away in order to maintain our sanity. Too much at once is not good for anyone. But Livy has changed our lives in many ways and has proven that the impossible is possible. She reminds us that as long as we are a team, we can get through anything.

Allison and I sometimes joke that we will always be a couple because we will never find others who will understand our situation and love our girls as much as we do. While many have divorced because of circumstances like ours, it has only brought us closer and has allowed us to view life from an entirely different perspective. What is unmistakable is that we have a strong bond that allows us to click.

With the amount of time we spend together, it is understandable that sometimes we drive each other crazy. She is an A type with emotions that overflow and spill out onto those who are the closest to her. She is thinking about today and what she needs to get crossed off her list before she has to pick the girls up at school or take Livy to an appointment. I am largely a B type who holds everything in until I have time to think. I am always throwing out ideas of things we can do next and dreaming up new concepts on which to work. You can see how we would clash. But when we focus on a task, we put our hearts and souls into it.

In the end, it is not really a question about how we do it but more a question of why. The answer to us is clear. Livy needs us to. We are her voice and her advocates. Hailey is witnessing what it means to help others. Kids learn from their parents’ actions and we want to set the best example we can. Millions of other people who have epilepsy and disabilities deserve it, too. We may not affect them directly, but the ripple effect from one act of kindness can change many lives.

I honestly believe Allison and I found each other for a reason. We are different in so many ways but are alike in many more. Our common beliefs are what allow us to have a real passion for one another. But it is our differences that make us better people. They cause use to challenge what we believe and to see a new point of view. We may not always agree but because of our respect for one another, we can compromise.

Today is Friday the 13th and it supposed to be very unlucky. I, however, feel quite the opposite. I got to wake up this morning, with my best friend of 15 years. I get to celebrate with her this evening and talk about where we have been and where we are going. I got to watch my beautiful, glorious daughters cuddle in bed together and communicate in their very special way. I get to relish in the fact that I love my family dearly. On this Friday the 13th, I feel like the luckiest man alive!

Happy Anniversary Allison!

I love you,
Jon

I Imagine A Cure
Holding Back On Big Expectations

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Comments 4

Guest - Karen on Friday, 13 September 2013 18:11

Happy Anniversary to both of you. May you have many more loving and blessed years together.

Best,
Karen Jacobs

Happy Anniversary to both of you. May you have many more loving and blessed years together. Best, Karen Jacobs
Guest - Vera Lane on Friday, 13 September 2013 18:37

Jon, this is a beautiful tribute to Allison! You are so lucky to have each other and the world is a better place because of both of your dedication to helping others. Happy Anniversary my very special son and "daughter". I love you!!

Jon, this is a beautiful tribute to Allison! You are so lucky to have each other and the world is a better place because of both of your dedication to helping others. Happy Anniversary my very special son and "daughter". I love you!!
Guest - Diane Scheinman on Friday, 13 September 2013 19:10

Jon, as we always say you should be a writer. You said it all and so clearly we feel the love and commitment between you and for your girls. Happy Anniversary! Have a fantastic evening celebrating each other and the journey you have taken together. Lots of love, Diane

Jon, as we always say you should be a writer. You said it all and so clearly we feel the love and commitment between you and for your girls. Happy Anniversary! Have a fantastic evening celebrating each other and the journey you have taken together. Lots of love, Diane
Guest - Susan sullivan on Saturday, 14 September 2013 22:25

Happy 15th anniversary Jon and Allison.
Your beautiful daughters are so fortunate to have you two as their parents.
Your tireless love and commitment to each other is beautiful....keep on trucking !

Susan suliivan

Happy 15th anniversary Jon and Allison. Your beautiful daughters are so fortunate to have you two as their parents. Your tireless love and commitment to each other is beautiful....keep on trucking ! Susan suliivan
Guest
Monday, 10 August 2020

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