Livy's Hope Blog
Life isn't always all butterflies and happy songs. Like most people, our life can get ugly and we don't always show that side of ourselves to others. I read an article yesterday about "fakebooking" and the refreshing truth it discussed how we all, from time to time, edit the "suckage" from our lives and act like we have it all together.
Most days I am happy and I do appreciate life and what has come my way. I share with others the good that I see and how much I try to take it all in and make the most of everything. We know we are lucky in so many ways but let's get real, we're human, we get angry, ticked off, frustrated, hurt, and overwhelmed too.
My mom and dad took me out to lunch today for my birthday to my favorite restaurant. It was such a treat and I loved spending the time alone with them. We are usually surrounded by my girls or my sister's son so this was quality adult time. We got to talking about a wish my dad has always wanted, to spend a vacation with all of his kids and grandkids. Sounds like a perfectly reasonable and typical request from a grandparent. Growing up I spent many vacations on the road with my family traveling to Chicago, Nashville and the Smokey Mountains. We were even able to go to Europe as a family (my mom wouldn't go without us kids). I have so many wonderful memories of a childhood filled with lake swimming, water skiing, hiking, alpine sliding, and so many other great adventures. We were lucky.
Jon and I know how important it is to give our family adventures as well. But reality is, we aren't living in the same reality. As parents of a child with special needs, we know too well the difficulties that come with traveling away from home. We have tried as a family days at Disney, hotel sleepovers, trips in the car. They all came with hardships that took the fun out of the "vacation".
Hi everyone! I just wanted to say thank you for all the wonderful donations you've made. I love Livy so much. I am very happy to help and I am very happy that you are too! You all are very generous.
It was so exciting to be in the newspaper! It is very funny to be recognized by people when I am out shopping in stores with my family. People say things like, "Are you the Hailey from the newspaper?" and "I loved the story very much." Have you read the story yet? What do you think?
After watching the movie A Dolphin Tale, we decided to take the girls to the Clearwater Aquarium. For those of you who have not seen the movie, A Dolphin Tale is the story about Winter, a dolphin who lost her tail after getting caught in a crab trap. Winter was nursed back to health at the aquarium where she was fitted with a prosthetic that enables her to swim. She became an instant sensation and inspiration to many of those with disabilities. People from all over the world travel to see her and to experience her amazing story.
While at the aquarium, we saw Winter and had a close encounter with her friend Hope. Both the girls really enjoyed the experience. Dolphins are amazing creatures and Winter's will to live and persevere is an example for us all to follow.
It is always a challenge giving Livy a bath. She is getting heavier and longer and outgrowing our current set up. This video will show you how we lower her into and lift her out of her bath chair. We have discussed various possibilities with a contractor to add on a bathroom that will accomodate her for years to come. We would be able to roll her bath chair in and out of a shower or use her lift to put her in her chair. At this point, Livy is the only one who looks forward to bath days. But since she is happy during and after, we are happy too. Enjoy and thanks for reading!
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It seems as though our second home is Michaels or Joann Fabrics, also known as the "project store". We make many visits to the project store so Hailey can pick out the beads she needs to make her bracelets or to purchase the paints she uses for her paintings. On this outing, we wanted to take everyone along so you can see how Hailey selects her beads. She has a great eye for colors and patterns and is able to assemble a bracelet in her mind before actually putting it together.
We are so proud of her for taking the time to do this for her sister. She still doesn't realize the magnitude of what she is doing or the impact she is making. She would say she does it because she loves her sister and she wants to be with her family. I can't think of any better reason.