Lemonade For Livy

Fundraising

Livy's Hope For A Cure Campaign

Our daughter, Livy, has had epilepsy her entire life. Epilepsy is a medical condition that produces seizures. For more information about epilepsy, please visit the Epilepsy Foundation website. Livy underwent two major brain surgeries and although the surgeries have helped, she continues to have seizures. She is one of 65 million people around the world living with epilepsy. Despite the number of people that have epilepsy, research for a cure continues to be underfunded. Epilepsy remains one of the world’s least understood major chronic medical conditions.

Over the last several years, Livy’s twin sister, Hailey, has played a big part in raising money for Livy. Hailey will do almost anything for her sister but realizes that she cannot raise enough money on her own to fund the research needed to help her sister and the millions of others with this disorder. Therefore, Livy’s Hope is sponsoring a fundraising campaign called Livy’s Hope For A Cure.

The goal of the campaign is to increase awareness about epilepsy and to raise $1 million for the Epilepsy Foundation to support them in their mission to stop seizures and SUDEP (Sudden Unexplained Death in Epilepsy), find a cure and overcome the challenges created by epilepsy.

Livy and the families we meet who are struggling with epilepsy have taught us a lot about ourselves and about life. We have seen the worst side of the disorder and what it can do. When we hear of parents with newly diagnosed infants, it brings us right back to the day Livy was born and the deep emotions that accompany that phase of our lives. Regardless of age, epilepsy acts as an invisible force ready to strike any place, at any time. 1 in 26 people will be diagnosed with epilepsy over the course of their lives. That is not acceptable. Our goal is to connect with individuals sharing a similar vision and purpose to find a cure.

At the heart of Livy's Hope For A Cure is a father’s promise to his daughter. We are driven daily to keep that promise by bringing people together to socialize awareness, by developing creative and innovative fundraising initiatives and by telling the inspiring stories of the epilepsy community in order to spread hope and motivate people to take action. Click here to read A Father's Promise.

A Father’s Promise is now our promise to you.

Please join us in Livy’s Hope For A Cure so the millions of people who have epilepsy and their families can live in peace.

As Hailey says, “There is hope in each of us. It only takes one person to change the world.

To donate on-line, please click here to visit our dedicated page on the Epilepsy Foundation website or make checks out to the Epilepsy Foundation and mail to:

Livy's Hope
PO Box 15326
Clearwater, FL 33766

If you would like a tax receipt from the Epilepsy Foundation, please make sure to include your address so one can be mailed to you.

Read more about our LEMONADE FOR LIVY weekend and our IMAGINE A CURE fundraising event and see how people come together to make a difference.

If you would like to take part in our campaign as an individual, organize a group or have any other questions, please contact us.

Jon Scheinman at This email address is being protected from spambots. You need JavaScript enabled to view it.

Allison Scheinman at This email address is being protected from spambots. You need JavaScript enabled to view it.

Below is the list of ongoing activities. We welcome any other suggestions you may have. This campaign is about working together to help others so we appreciate any assistance you are willing to offer.

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      • Monetary Donations: Donations are accepted on a dedicated page on the Epilepsy Foundation website. Click here to donate. Checks can be made out to the Epilepsy Foundation National with a note stating "Please apply to Livy's Hope For A Cure" and mailed to:

        Livy's Hope
        PO BOX 15326
        Clearwater, FL 33766

        *Please include your address if you would like the Epilepsy Foundation to mail you a tax receipt.
      • Lemonade For Livy: Make A Stand Against Epilepsy by holding a lemonade stand. All proceeds support finding a cure for epilepsy. Please click here to learn more about Lemonade For Livy and the official 2014 weekend occurring July 25th - 27th. Help us turn the country purple by registering your stand today!
      • I Am Hope Downloads: Carmen Magro’s I Am Hope is available on iTunes. Carmen has graciously committed to contributing the proceeds of I Am Hope to Livy's Hope For A CureClick here to download.
      • The Livy’s Hope For A Cure Store: All profits from the Livy’s Hope For A Cure Store will help fund epilepsy research. Click here to enter the store.
      • Online Auctions: During the campaign, we will be holding online auctions for artwork and jewelry. If you have an original piece you would like to contribute to our campaign to have us auction, please mail it to us at:

        Livy's Hope
        PO Box 15326
        Clearwater, FL 33766

        Also, please consider contacting local artists and jewelry designers and ask if they would be willing to donate an item.
      • Casual Purple Fridays: Wear purple on Fridays. Try to get as many of your classmates or coworkers to wear purple during the campaign. Livy’s Hope For A Cure Shirts are available in the Livy’s Hope For A Cure Store. Profits from shirt sales help fund epilepsy research.
      • Purple Flash Mobs: See how many people you can get in one place at one time wearing purple. Have all who attend contribute a dollar and watch how fast it adds up. Organize a purple flash mob event through social media. If you want to go all out, try to fill a stadium and create a sea of purple!
      • Color Your Life Purple: Paint your nails purple, wear purple hair accessories, wear purple jewelry, wear a purple tie or buy an item from the Livy's Hope For A Cure Store. Approach a local salon and ask if they would be willing to donate a $1 or more when a person has their nails painted purple or talk to a retailer who would be willing to donate a $1 for certain purple items that are sold.
      • It’s Time For Change Jars: Construct a creative It’s Time For Change…Help Fund Epilepsy Research Jar and collect spare change. Try putting a jar in a classroom, your workplace or local business. Suggest a specific day of the week such as Casual Purple Fridays for everyone to empty their change into the jar.
      • Contact Local Businesses: Find sponsors to hold an event. Ask if they will hold a fundraiser or contribute a portion of sales from a specific item they are selling. Ask them if they would consider creating a unique item for the fundraiser.

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Q: How can I donate?

A: Click here to donate on our dedicated page on the Epilepsy Foundation website. You can also mail a check made out to the Epilepsy Foundation National and mail it to:

Livy's Hope
PO BOX 15326
Clearwater, FL 33766

*Please make sure to include your address if you would like them to mail you a tax receipt.

You can also download Carmen Magro's song I Am Hope from iTunes. Carmen has graciously committed to contributing the proceeds of I Am Hope to Livy's Hope For A CureClick here to download.

 

Q: What are your goals for the campaign?

A: Our goal is to spread awareness about epilepsy and to raise $1 million for the Epilepsy Foundation to support them in their mission to stop seizures and SUDEP (Sudden Unexplained Death in Epilepsy), find a cure and overcome the challenges created by epilepsy.

 

Q: How long does the campaign last?

A: The campaign is now a part of what Livy's Hope does and who we are. It will not end until a cure for epilepsy is found.

 

Q: What can I do to get involved?

A: As an individual, you can participate in or hold as many of the fundraising events as you like. We will also be holding organized events which you are welcome to attend. Try to create more awareness for epilepsy by wearing purple and sharing our story. Find as many people as you can that would like to be involved. We will need plenty of people to donate and to volunteer throughout so we can reach our goal.

We also need captains to organize their own teams.

 

Q: How can I receive updates during the campaign?

A: We will be sending out regular updates on Facebook, Twitter and through email. Please like our Facebook page or follow us on Twitter. If you would like to receive email updates, please submit your email address in our Newsletter form on our home page.

 

Q: How can I contact you if I have questions?

A: Please contact Jon Scheinman at This email address is being protected from spambots. You need JavaScript enabled to view it. or Allison Scheinman at This email address is being protected from spambots. You need JavaScript enabled to view it. if you have any questions regarding Livy's Hope For A Cure.

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A Father's Promise

A Father's Promise

Livy, from birth I have watched you. Stiffening, shaking.

Everything new.
I am scared.
What do I do?
I am not ready.
I look in the mirror, eyes glossed.
Tears, I wish they were happy.
Why, why is this happening?
Spirit crushed.
I am lost.

Doctors, EEGs, surgeries, shunts, oxygen machines, hospitals, medicine pumps.
Beeping, would someone please stop the beeping?
I hold my breath when you do.
When will it stop, when will the seizure stop?
Ashen, you are ashen.
Finally, it breaks.
You are back.
Where did you go?
Do you know?
Do you know what happened?

Time is stolen.
Tick-tock, lives torn apart
10 seconds, 10 minutes, 10 hours, 10 days, 10 weeks.
Stolen.
But look at you, Livy.
You amaze me.
Your smile. Your gorgeous, beautiful smile.
You light the room, you light my life.
I know you are back when you smile.
It is your signal that all is clear.
The monster is gone.
For now.
Back to the closet, under the bed.
Hiding, lurking in the shadows.

Epilepsy, you are the nightmare.
You terrorize our children.
Waiting, always waiting.
Constant vigilance.
I know every move you make.
I thought…
Did you see her flinch? Is that a new twitch?
Changing, morphing.
Always one step ahead.
But someday, somewhere, I will catch you.
You think you are free.
Turning lives upside down.
Striking whenever you please.
No more. No longer.

I was afraid.
I saw eyes that were not Livy’s, quivering, bouncing.
That look. It was not her. It was you.
Now I see through the fog.
I know the truth.
The fear I once felt, tucked down deep.
Burning, boiling, a yearning to do more.

Epilepsy, you picked the wrong dad.

I did not ask for this.
But I accept it.
I accept your challenge.
You give me purpose.
Was that your intent?
I do not think so.
You may have her now, but I am coming for you.
You have stolen from me.
My daughter's innocence.
A life of peace.

I will not give up.
I will not relent,
I will never give in.
You have awoken me, a passion I never knew.
As long as I am here, I will fight you.

Yet you are a coward, you attack our youngest and most at risk.
No matter sick, hurt, asleep in their beds.

At night I check, chest rising, skin warm,
What would I do if she took her last breath?
It happens, the ultimate price.
I have read stories, so many stories.
The pain, the anguish.
I hurt for them.
I am angry.

You made me.
I am your enemy.

I am not alone anymore.
I will gather determined mothers, fathers, sisters and brothers.
Warriors in your throws aching to break free.
You have no idea what you started.

Think Livy is your victim?
You are wrong, very wrong.
She is a Hero, my Hero, with the power to inspire and give hope.
She is stronger than you could ever dream.

You used to make me cower, retreat.
But now I am emboldened.
The scars burn and I remember.
Oh do I remember.
Livy bears her scars, physical, emotional.
What you have done to her.
Her little body.
You broke her so many times.
My God, what I have witnessed.
My heart and soul are changed.

But you will not beat me.
I will chase you and never stop.
Wherever you are, I will be there.
You have found refuge in the shadows.
But no longer.
I will bring you to the light and show your true colors.
My color is purple through and through.

If our Warriors falter, I will be there to lift them up.
To tell their stories.

This is your last warning, Epilepsy.
I am here to make my stand against you.
I made a promise to my daughter.

 

Lemonade for Livy is now a national program managed by the Epilepsy Foundation. Our family is thrilled to work closely with the Foundation so together, we can strengthen the campaign and enable it to have a bigger impact. To find out more and to register your stand or party, please visit epilepsy.com/lemonadeforlivy. The official Lemonade for Livy weekend in 2017 will be July 28 - 30 so save the date. But don't forget, you can hold an event at any time throughout the year. 

 


Lemonade for Livy is an initiative that creates epilepsy awareness and raises funding for the Epilepsy Foundation. The event occurs yearly over the course of the last weekend in July. It is an effort that brings people from around the world together to build epilepsy awareness, provide funding to overcome the challenges of living with epilepsy, and to fund new treatments. If we work as one and if we speak with a collective voice, we can make significant progress toward finding the answers that will ultimately lead to a cure.

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. We are committed to helping the Foundation achieve their mission and to giving hope to those living with epilepsy. 

12-year-old Olivia Scheinman (Livy) is the inspiration and symbol behind the Lemonade for Livy movement. What started as one neighborhood lemonade stand to raise money in honor of Livy is expanding into a global campaign. It continues to grow because of Livy's twin sister Hailey and the special bond the girls share, a mother's love and a father's promise made long ago. Click here to read A Father's Promise.

Since birth, Livy has been plagued by the damaging effects of epilepsy. We have watched her slowly slip away from us for months on end because we lost control of her seizures. She has endured multiple major brain surgeries but the seizures persist. We will no longer sit idly by and watch epilepsy steal the precious time we have with her.

65 million people across the globe have epilepsy. At this moment, parents are at hospitals in neonatal units watching their newborns have seizures. SUDEP (Sudden Unexpected Death in Epilepsy) has claimed another life. A single mother is struggling to find a way to get to work because epilepsy has taken her ability to drive. A father is standing at the bedside of his 10 year old daughter praying to God to stop the uncontrolled convulsions. There are millions of stories just like these in every corner of the globe.

Epilepsy is a major health issue that receives less than $2.00 of federal funding per person with epilepsy. There continues to be a stigma and lack of awareness associated with the disorder in our communities. We need to do more! Just imagine the progress we can make if we all work together. We will continue to aggressively work toward a better future for people living with epilepsy. We ask that you participate in Lemonade for Livy and join us in a journey that is shared my millions of families.

 

 

Donate

Livy requires an abundance of therapies which are not covered by our insurance company. She also has many extra needs due to her disabilities.

If you would like to give a gift to Olivia to help fund her therapies and care, please click the link below.

*Livy's Hope is not a charity/non-profit organization. Donations are not tax deductible. Any gifts of support go directly to Olivia.


If you would prefer to mail a check, please make the check out to Allison Scheinman and send it to:

Olivia Scheinman
c/o Livy's Hope
PO BOX 15326
Clearwater, FL 33766

LIVY'S HOPE HOLIDAY ORNAMENT 2012

Happy Holidays!

Olivia's spirit is the embodiment of hope, faith and joy. In honor of her and in the spirit of the season, we have created the 2012 Livy's Hope holiday ornament. These ornaments are perfect to hang on your own tree or to give as a gift to a loved one in need of inspiration.

The ornament costs $16.00 with free shipping and handling to the continental United States. We started with 100 and our goal is sell them all by Christmas.












Connect today and join us on
our journey of hope.

 

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