Special Needs Dad 365

Thank you all for the birthday wishes yesterday. I truly appreciate your taking the time to post some very thoughtful comments. As I had anticipated, I didn’t get the gift for which I had asked. Livy had a number of seizures. But I still hope my birthday wish comes true. Overall, it was a wonderful weekend. I spent time with family and did some celebrating.

One of the gifts I received was the first response to the Finding Hope Project I proposed last week. Allison checked our PO Box this weekend and in it was a small, red envelope. It came from our home state of Florida.

In the envelope was a notecard and the meaningful word this mom wrote was, “Trust.” It’s such an amazing word because at some point, as special needs parents, we often entrust our most valuable treasure, our kids, to others. We send them off to school and hope they will be cared for well. Many, like Livy, are nonverbal. They are incredibly vulnerable and susceptible to mistreatment. We put our trust in doctors to make the right decisions for conditions that are not understood. We trust in our relationships that they are strong enough to last through sickness and in health, the good times and the bad. As we age, the inevitable question of, “Who will take care of our kids when we are gone?” begins to surface. That answer always has to do with who do we trust the most.

For anyone who has struggled their way through a challenging time, religion often plays a role. Some look to God with prayer and for questions to be answered. They trust that there is a reason and a plan for everything according to God’s will. Yet others are angry because there seems to be no way to understand what is happening. They distance themselves from their faith and hold God responsible. They feel their trust has been broken. Going deep into religion is not a topic I am prepared to cover. There are many different perspectives in this area so I will leave it at that.

When trust is broken, it takes a long time to rebuild. It’s especially true when it affects our kids and more so for those who are disabled. It’s an internal battle that takes years to overcome. Part of the journey is building ourselves back up when we are let down and finding the confidence to open ourselves up again to trust.

I hope more of you will send along the word you turn to when you get discouraged or that has special meaning. Remember, write it on the back of a postcard that represents your state or country, or wherever you live, and why the word is important. You can add other comments as well if you so choose. Then mail it to:
Livy’s Hope
P.O. Box 15326
Clearwater, FL 33766