I would like nothing more than to see Livy wake up in the morning and go without shaking or quivering for 24 hours. I would like her to experience a day without being partially impaired by abnormal brain activity. I would like, for a day, to not say, “She’s having a shaky,” which is what we often call them. I would like Livy to hold a sign that reads “24 Hours Seizure Free.” Even that would be a celebration.
Tomorrow, when I blow out my candles, I will once again wish for the same thing I have wished for the past 14 years. It’s a wish that every parent struggling with epilepsy has made. My wish is for Livy to respond to a treatment that reduces the number of seizures for good. I have blown out hundreds of candles while making the same wish and still am hoping that someday, it will come true.