Special Needs Dad 365

Epilepsy is a Puzzle
This morning, Allison left for New Orleans to attend the annual American Epilepsy Society meeting. She is participating in some ses tomorrow. It's ironic that she's there with many of the most talented neurologists and epileptologists in the world and I'm at home watching Livy have seizures.

What I wish could happen with all that combined brain power is to find more answers faster. We put so much faith in medical professionals and often want to blame them when they don't have solutions. The fact is, it's not their fault. Livy is an incredibly difficult case. Epilepsy is like a puzzle with missing and shifting pieces. Just when we think we have it figured out, the game changes.

In reality, we have likely never been close to understanding how Livy's brain works. The doctors are just as much in the dark as we are. Okay, maybe they know a bit more than we do. But for lack of an answer that can control her seizures, it seems we are all at the same point in the race. We often feel like we are taking one step forward and two steps back.

I am happy that the doctors come together at this meeting every year. It gives them a chance to share ideas, learn, and discuss their field. It is described as the largest gathering on epilepsy in the world for epilepsy professionals in academia, clinical practice, industry, and advocacy. My hope is that they can work together more efficiently and effectively to solve these difficult issues. There are millions of parents, just like me at home right now, running the same race. We are counting on our doctors to help us get to the finish line.