What I wish came with a book like this is a step-by-step parent's guide to caregiving for the chronically ill child. Wouldn't it be nice if it was a two-for-one deal? No, there is no manual for this type of life. It's learn on the fly, trial-and-error as you go. What I hope for is not to mess up too badly because if something goes wrong, it is much more than saying you’re sorry and moving on. It could mean a trip to the ER followed by a lengthy hospital stay or worse. We have had those stays and watching your child going through an incredibly challenging time for months is literally like sticking a knife through your chest right into your heart.
So while Allison is away, I will go by the book. For now, it's the best Encyclopedia Olivia we have.