I am a special needs dad 24x7x365. Although Allison is Livy's main caregiver, I am in this game every minute of every day. I love my daughters and I love my wife. I can't imagine life without them and it hurts to even try. Where else could I find a smile like Livy's:)
Many dads leave a marriage and a family when a child has perpetual medical challenges. It still boggles my mind why they think that is acceptable. Perhaps they feel like they didn't sign up for everything that comes with life throwing them a curve ball. I say it's their loss. They miss the incredible wonder amidst the often insurmountable challenges.
Perhaps that's why there are so many social media moms out there who freely tell their stories of their single mom, caretaker life. They see the beauty despite it all. So I'm going to add a dad to that list. For the next 365 days, I'm going to post daily what it's like to be a dad to Livy, what she endures, how our family deals with her disabilities, how Hailey has been impacted, and much more. This will be from a father and husband's perspective. Sometimes it will be a long post and sometimes just a few words. Sometimes it may be an image, a poem, or a video. There will be happy days and days I wish I could crawl back into bed and pull the covers over my head. It will be open and honest. There will be tears and there will be laughter. There will be anger and frustration. There will be hope and inspiration. They are all a part of our world and I have something to say about it. That's what makes it a life worth living. So cheers to the next 365 days!