Lemonade for Livy 2016 is officially open for registrations! We have some great news, too. Check out the brand new Lemonade for Livy site that is now live at epilepsy.com/lemonadeforlivy. The Epilepsy Foundation of America has done an amazing job to bring the campaign to life and it will only get better from here. The official weekend is July 29 - 31. There will be a lot happening over the next few months as we show why more epilepsy research is needed.
There are many ways to get involved. Here are a few examples:
Hold a family stand or party
Have an event on a college campus
Hold a lemonade stand and bake sale at your place of business
We love seeing creative ideas for holding events. We are also looking for local and national sponsors who want to get involved in an effort that can benefit 3 million people across the country and 65 million people around the globe.
Help to make a stand against epilepsy and raise funding for research. Go to epilepsy.com/lemonadeforlivy to register now and start your virtual stand today!
National Walk for Epilepsy 2016
The 2016 National Walk for Epilepsy was amazing! It was the 10th anniversary for the walk and was the most successful one yet! The team at the Epilepsy Foundation brought thousands of people together in a show of support for those living with epilepsy.
At a reception the night before the walk, Hailey was announced as the President and CEO of the new Kids Crew program that launched at the Foundation. Click here to see a video from that evening. She is so excited to have a bigger role and to help kids get more involved. The Kids Crew will focus on three areas in which kids can make a difference:
Sharing their story
Participating in events
The Kids Crew is for kids 14 and under and is free to join. Please go to epilepsy.com/kids-crew for more information and to complete the registration form. You can also click here to watch Hailey introduce and explain the program.
The day of the Walk, Hailey had her own booth to tell kids about the program. She loved handing out information and talking to kids and their parents. Also, Jon was in the Do-It-Yourself booth to talk about the Community Action Network and the other activities people can do in their communities. The whole day was moving and inspirational as people gathered to remember those who have been lost to epilepsy, share their experiences with one another, and to work toward a better future for those with the disorder. For more pictures of the Walk, please click here.
Hailey and Jon were also asked to be a part of the Teen Speak Up/Public Policy Institute program that occurred over the course of a few days following the walk. The program is for teens with epilepsy and their parents to visit the nation's capital, receive advocacy training, meet with their legislators, and tell their personal stories. Hailey and Jon had the opportunity to meet many new families, present the Kids Crew program to the parents of the teens, and learn more about advocating. Then, they joined the Florida group and spoke to legislators on Capitol Hill. They had an incredible time with a group of dedicated individuals from across the country working hard to convince legislatures to increase funding for research and new treatment options.
Livy was paired with Tracy back in July of 2013 and it has been amazing since the start. Tracy is dedicated and has always kept us informed when, where and how she is running for Livy. She even sends Livy medals from competitions! Tracy and her family have held Lemonade for Livy fundraisers and they support much of the work we do through Livy's Hope.
So when I saw this image, I was brought to tears. It had a profound impact on everything I know. Tracy has literally had Livy's name emblazoned on her, permanently. She is now a part of our family and of Livy's life forever. To me, it represents the meaning of hope and the farthest thing from being alone I can imagine. Tracy will wear the I Run 4 Livy moniker with pride every day knowing that she has changed a family and will be inspired by a little girl who gives hope to so many. When others see it and ask Tracy what it means, she will be able to share Livy's story and describe to people why they should never give up.
"Hope is the companion of power, and the mother of success; for who so hopes strongly has within him the gift of miracles."
- Samuel Smiles
Don't Give Up. Give Back.™
Thanks so much!
Jon, Allison, Hailey and Livy
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