In September, we were invited to speak at Acorda Therapeutics located in Ardsley, NY. We had a wonderful experience meeting the team and telling them about the Livy's Hope story. We also learned more about the company and the driving force behind all that they do. The company was founded in 1995 by Ron Cohen with a single but challenging mission: to develop therapies that restore neurological function and improve the lives of people with neurological disorders. It is amazing that their commitment to medical innovation and patient benefit is as strong today as the day the company started.
After our presentation, we attended their Lemonade for Livy event. They held a lemonade tasting contest and bake sale. People from across the company participated in the event and the lemonade stand even went mobile. In the end, Acorda donated $6,700! That brings the total for Lemonade for Livy to over $35,000 this year. We are so grateful for their generosity and commitment to the community. For more information about Acorda, please visit their website at www.acorda.com.
The next project for our Kids Crew will be to support the pediatric program at the Lighthouse of Pinellas. The Lighthouse serves children who are blind or visually impaired. The Crew is currently raising funds to help pay for gifts to be given to the children of the program at their Breakfast with Santa event on December 12th. If you would like to help support the Crew's gift giving initiative, please click here to donate on their fundraising page.
Allison and Hailey were recently interviewed by Adrian Paul from the Peace Fund. The Peace Fund focuses on small, under-funded and hard-working charities who are determined to make a positive difference to the lives of children living in extraordinarily difficult circumstances. Many of you will know Adrian from his days of playing the staring role in the series Highlander. The topic of their interview was about epilepsy, perceptions about the disorder and how the understanding of epilepsy has changed over time. Click here to listen. The interview starts at around 30:00. They also talked about Lemonade for Livy and the need for more research.
The Peace Fund recently started a new program called Helping Hand which is an initiative that provides specific assistance to a child facing insurmountable obstacles in their lives. This month, they are helping our Livy! They are raising funds to purchase her a Tobii Eye Gaze technology system. The system will allow Livy to communicate by making selections through software with her eyes. We are so thankful for their support and look forward to giving Livy a device that will help her for years to come. If you would like to make a contribution to help the Peace Fund with Livy's fundraiser, please click here.
In October, we will be participating in the Purple Pumpkin Project which is an effort to support people with epilepsy and to raise awareness. It was started by Ron Lamontagne in honor of his son who was diagnosed with epilepsy in 2009. We encourage all of you to paint your pumpkins purple for the season and display them to help create epilepsy awareness. You can paint a pumpkin by yourself or gather a group and paint them together. It is an easy and fun way to support the epilepsy community.
What is your destiny? Don't ever stop seeking and fighting for your dreams. Click here to watch this video and be inspired to continue working toward whatever it is you were meant to do.