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Livy's Hope Blog

Welcome to the Livy's Hope Blog!
Jonathan Scheinman

Epilepsy, I Am Tired Of You

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The other morning, I was reminded all too well just how unpredictable epilepsy can be. Livy began having seizures at 6:00 AM and didn’t stop until 8:30 AM. By the time she fell asleep, she had close to 50 of them…50 in less than 3 hours. I sat there with her, wishing them away and then praying them away. “Please let this be the last one. Please, for her sake!” Waiting...then shaking again and again.

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Hailey and Livy Scheinman

Helping My Sister


Hi. This is Hailey. For those of you who don't know me, I am 9 years old and I am Livy's twin sister. I wanted to talk to you today because I have something very important to say. I want to tell you about Livy and some of her friends.

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Jonathan Scheinman

Lemonade for Livy: The Path to Peace

Ever since the girls were born, I, as a father, have constantly struggled with finding a purpose for what Livy goes through. At first it was the never ending seizures and brain surgeries. Then a broken leg, then precocious puberty and then a fractured heal. Now it is her permanently dislocated hip which causes her discomfort each day. Watching the look of pain on her otherwise glowing face is torture. For a little girl to go through so much doesn't seem fair.

Over the last nine years, I have been able to focus on various projects and my daily routine to keep me sane. I am an avid gym rat which is where I have blown off a large amount of steam when it comes to my squabbles with God, doctors and epilepsy. The latter bearing the brunt of my fury. When those we love are hurting, it is human nature to want to blame someone. But I have run out of blame. After tens of thousands of seizures, blaming someone or something seems futile and a complete waste of energy.

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