I spent this past week with Livy at another intensive therapy session. In the past, she was able to endure the typical three week course but we have had to scale down to one week at a time. She was fatiguing after about a week and half and with the exhaustion came increased seizures. No thank you.
This week we met a very cool kid who was going through an intensive session as well. I have seen many kids endure these very difficult workouts and each time I find myself in awe. We are talking three hours a day, five days a week for three weeks straight. I see the pain in their faces and hear the ache in their voices. These kids are pushed to their limits to do the simple tasks so many of us take for granted.
I watch as the kids are told over and over again to keep pushing, keep trying, keep going. They continue to come in day after day with a new found strength and the will to go on. Some of them do not know or understand why they are working so hard but the ones who do are holding on to hope that it will help them to sit, stand or walk on their own one day.
Livy is not able to tell us, "Stop pushing because it hurts here," or "I can't do it again because I have no more energy". She can only show pain and exhaustion through her expressions or a whimper and cry. We can only imagine how she must be feeling and we only make her work as hard as we think necessary. It is not an easy task for a momma to stand by and watch as her kiddo is hurting. But we know it is for the best and will only help her in the end.
These kids show up each day and give it their all. They and their parents are fighting for the chance to gain typical skills and sometimes just to improve the quality of life. So here's to Livy and the cool kid and all the other kids who don't give up and to the therapists that fight right along side of them. They are my champions.