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Livy's Hope Blog

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Stay Strong

Stay Strong

A few weeks ago, we had an appointment with Livy’s neurologist. Livy has had some longer seizures lately and we wanted to discuss our options and revise our plan for how to handle them. Livy is currently on four antiepileptic medications and our options are limited. As I sat there holding Livy in my arms, I thought how surreal the journey continues to be. Most of our time is focused on Livy’s epilepsy because we must put out the biggest fire first. Unfortunately, it leaves us with less time to dedicate to her other disabilities. When the doctor came into the room, we told her about Livy’s recent struggles. We then went through the list of medications she is taking and what plan we should put in place. Our options…1, increase medication A to this level…2, increase medication B to this level…you see where this is heading.

After going through all four, the next comment from Livy’s doctor was “We really don’t know how all of the meds interact and the effects that can have.” Did I mention that the known side effects of the medications she is on are nausea, vomiting, upset stomach, diarrhea, constipation, tremors, slurred speech, loss of balance or coordination, rash, headache, mental slowness, trouble concentrating, confusion, dizziness, drowsiness, nervousness, sleep problems (insomnia), loss of strength and energy, anxiety, nervousness, irritability, depression, drooling, restlessness, jerking movements of the eyes, shaking of the hands, and memory problems. These are just the more common side effects, not the serious side effects.

I’m not a doctor but I’m pretty sure all these drugs mixing together is not a good thing. Now imagine being in a position where as a parent, you have to choose between prolonged, daily seizures or side effects (short and long term). Keeping it real here, can you even begin to imagine the emotions we suppress to make it through each day? They are buried, far down. Ever wonder why we choose to believe in hope over fear? The moment fear creeps in, those feelings start to rise. Our next option will be CBD oil (cannabis with extremely low THC) which will take another four months to get if we go through the proper Florida channels. But what if that doesn’t work. What next? It’s not effective for everyone.

Are we as parents supposed to know what to do? Where is the handbook? I don’t remember this part in the pages of What to Expect When You’re Expecting. You know, the section that outlines the incredibly complicated kids? We have no idea what to expect. There are many days when we wing it.

I give so much credit to parents who share a similar experience and make it up as they go. It doesn’t matter if it’s epilepsy, cancer, autism, or other chronic health related issues that afflict our children. To those families that once had a life plan but now are on a different journey, we feel your pain. You are not alone in your struggles. We are writing the book together.

We may wear purple and you may wear yellow, or blue, or other cause related colors, but the fact is, we love our kids and we feel helpless when we can’t heal them. We search for answers. We ask why. We pray for options. We seek solace for our kids when they are suffering. Too often, we have little control which frightens us because we have no idea what will come next. Our basic instincts to do whatever needs to be done to protect our children kick in. In those darkest of days, nothing else matters besides their health.

So I say to all our fellow warrior parents, stay strong. Keep searching for the best treatments and the best doctors. Share your stories with others because your experience could be someone else’s lifesaving answer. Fight for your kids like you have never fought before. When you have gone as far as you can go, go farther. When you have nothing left to give to them, give more. When a doctor has no answers, find them yourself. Never stop searching. And never, ever give up hope.

A Father's Journey of Hope
This Little Piggy
 

Comments 3

Guest - kim park on Thursday, 13 July 2017 01:43

THANKS TO DR EWOIG FOR CURING MY SON
My son has partial epilepsy for the past 18 years. Dr's have tried various means but he has seizures almost every month. The first epileptic occurred when he was five years old. i took him to a specialist who subscribed anti-epileptic medication. From then on he had to take four capsules per day, but most of the time he had seizures until I got to know about Dr.ewoig product to cure epilepsy. we order for the product, now i can tell you my son is now living a better life thanks to dr ewoig His herbal remedy is the only permanent solution to Seizure. You can always contact him through his email for more information(drewoig18@gmail.com)

THANKS TO DR EWOIG FOR CURING MY SON My son has partial epilepsy for the past 18 years. Dr's have tried various means but he has seizures almost every month. The first epileptic occurred when he was five years old. i took him to a specialist who subscribed anti-epileptic medication. From then on he had to take four capsules per day, but most of the time he had seizures until I got to know about Dr.ewoig product to cure epilepsy. we order for the product, now i can tell you my son is now living a better life thanks to dr ewoig His herbal remedy is the only permanent solution to Seizure. You can always contact him through his email for more information(drewoig18@gmail.com)
Guest - sophie on Saturday, 19 August 2017 20:19

WOW ALL THANKS TO DR WILLIAMS I HAVE NEVER BELIEVE IN HERBAL REMEDIES.

I am Sophie from Canada, my son have been a patient of seizure . he do have the attack two to three times a week, which has really affected his education and his life., I had tried a lot of anti viral medicine prescribed to me by doctors over many years now; but I could not see any improvements in my son's symptoms. One day while going through the internet ,
i got to know about this great Herbal Doctor who uses his herbal remedies in curing people from epilepsy,quickly i
contacted him and he he made me to know that the medication is a permanent cure, so i was interested,and he prepared a herbal medication for my son, which i received and he used it as instructed by dr williams. After two months the
improvement were very visible. the sleepiness and the abnormal behavior stopped, my son is so full of life now and there
no more no sign of seizure in him again. Am One of the happiest woman on earth since my son was cured from the problem of seizure,which he has been having for eight years now,
I would recommend this to all my friends,families,around the globe suffering from epilepsy.you can contact him through
his email on for advice and for his product,this is his email: doctorwilliams506@gmail.com , THANKS TO YOU ONCE AGAIN DR WILLIAMS

WOW ALL THANKS TO DR WILLIAMS I HAVE NEVER BELIEVE IN HERBAL REMEDIES. I am Sophie from Canada, my son have been a patient of seizure . he do have the attack two to three times a week, which has really affected his education and his life., I had tried a lot of anti viral medicine prescribed to me by doctors over many years now; but I could not see any improvements in my son's symptoms. One day while going through the internet , i got to know about this great Herbal Doctor who uses his herbal remedies in curing people from epilepsy,quickly i contacted him and he he made me to know that the medication is a permanent cure, so i was interested,and he prepared a herbal medication for my son, which i received and he used it as instructed by dr williams. After two months the improvement were very visible. the sleepiness and the abnormal behavior stopped, my son is so full of life now and there no more no sign of seizure in him again. Am One of the happiest woman on earth since my son was cured from the problem of seizure,which he has been having for eight years now, I would recommend this to all my friends,families,around the globe suffering from epilepsy.you can contact him through his email on for advice and for his product,this is his email: doctorwilliams506@gmail.com , THANKS TO YOU ONCE AGAIN DR WILLIAMS
Guest - maria on Wednesday, 25 October 2017 08:03

My daughter is 5 years old and has been healthy, and has been developing at a normal rate. I heard a loud thud. I found my daughter on the floor. There was vomit on the bed and my daughter was on the floor. It lasted 15 minutes. It was so scary. she was jerking very violently, and his eyes were rolling in the back of his head. It was horrible. No one should have to see their child like that, my doctor is saying she's had seizures. she had an mri ,an EEG,they did a spinal tap. After returning from the hospital, my daughter experienced vomiting, I could not bear to see my daughter going through this problem at the early age of her life. I read a lot of fake testimonies at blogs, Facebook and website of people that was cured from seizure with the help of a herbal doctor I have even been scammed severally, I explain to my friend about my daughter symptom and she told me that i shouldn't worry, she gave me a contact of a doctor. I met Lawson Bryan in Chicago and i contact him. I Explain about my daughter symptom, I made an order of his medicine.. I followed his instruction, His medicine has change my daughter health in less than 3 month she is totally free from seizures and vomiting, my daughter is cured from seizure. you can contact him +1 (979) 475-5130 or e-mail: dr.lawson52@gmail.com thank you.

My daughter is 5 years old and has been healthy, and has been developing at a normal rate. I heard a loud thud. I found my daughter on the floor. There was vomit on the bed and my daughter was on the floor. It lasted 15 minutes. It was so scary. she was jerking very violently, and his eyes were rolling in the back of his head. It was horrible. No one should have to see their child like that, my doctor is saying she's had seizures. she had an mri ,an EEG,they did a spinal tap. After returning from the hospital, my daughter experienced vomiting, I could not bear to see my daughter going through this problem at the early age of her life. I read a lot of fake testimonies at blogs, Facebook and website of people that was cured from seizure with the help of a herbal doctor I have even been scammed severally, I explain to my friend about my daughter symptom and she told me that i shouldn't worry, she gave me a contact of a doctor. I met Lawson Bryan in Chicago and i contact him. I Explain about my daughter symptom, I made an order of his medicine.. I followed his instruction, His medicine has change my daughter health in less than 3 month she is totally free from seizures and vomiting, my daughter is cured from seizure. you can contact him +1 (979) 475-5130 or e-mail: dr.lawson52@gmail.com thank you.
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Saturday, 25 November 2017

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