Blog

Livy's Hope Blog

Welcome to the Livy's Hope Blog!

Hanging In There

Livy's seizures increased dramatically Friday evening and she was taken to intensive care. She had been given Ativan multiple times and also a dose of Diastat. After no success, the doctors gave her a loading dose of Dilantin and Depakote. She finally settled down around 5am on Saturday. The rest of the weekend she was pretty quiet. With the addition of all of these new medications she tends to be very lethargic and not at all herself.

She had a flurry of seizures around 9:00 last night. Another dose of Ativan put her to sleep and she slept, as far as I could tell, all night long. She woke this morning with another shorter and milder flare up and she did not require another dose.

We have decided to give her another bolus of Depakote and see how she does. They will be drawing for levels in the morning and we will see where she is at. Today she is still pretty mellow. Her heart rate is up in the 150s and 160s. We think this is due to the heavy doses of meds and overall stress of being in the hospital.  Our goal is always to try to get a little smile out of her. That is usually a great indicator that she is heading in the right direction. We aren't quite there yet.

For more frequent updates, you can "LIKE" the Livy's Hope Facebook page at this link.

Thanks for being there for us and your continued prayers!

No Tricks All Treats
PICU vs. Party

Related Posts

 

Comments 4

Guest - Kathie on Monday, 29 October 2012 14:25

Praying for this precious little girl that her little body can fight off these horrible seizures. Also praying for strength for her family.

Praying for this precious little girl that her little body can fight off these horrible seizures. Also praying for strength for her family.
Guest - Paige and Ivan on Monday, 29 October 2012 18:51

Keeping Livy in our prayers!

Keeping Livy in our prayers!
Guest - Ms. Tracy on Tuesday, 30 October 2012 10:22

Livy I mis you sweetie. You and family are in my prayers. Get well, Im having livy withdraws.

Livy I mis you sweetie. You and family are in my prayers. Get well, Im having livy withdraws.
Guest - Susie Rich on Wednesday, 31 October 2012 10:43

Thinking of all the family--expecially Livy-lou. She is incredibly strong. This is just a bump in the road. You all need to do a little yoga to get you through this patch.

Love you all--

Susie and Andy (Molly, too!)

Thinking of all the family--expecially Livy-lou. She is incredibly strong. This is just a bump in the road. You all need to do a little yoga to get you through this patch. Love you all-- Susie and Andy (Molly, too!)
Already Registered? Login Here
Guest
Tuesday, 21 November 2017

Connect today and join us on
our journey of hope.

 

Facebook Twitter Pinterest Instagram Youtube Contact Us