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Livy's Hope Blog

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A Family's Stand Against Epilepsy


We have no idea what life for our family would be like if Livy hadn't been born with epilepsy. From the moment she took her first breath, she was destined to change what we perceived to be our path in this world. We never knew what epilepsy could do to someone or to a family.

A seizure was something we saw in shows like ER or House when people were in accidents or had brain tumors. We didn't know the statistics such as 1 in 26 people will develop epilepsy or that there are 3 million people in the United States and 65 million people worldwide that have epilepsy or that two thirds of people with epilepsy don’t even know the cause. We didn't know that an estimated 50,000 people in the United States die each year from status epilepticus (prolonged seizures), Sudden Unexpected Death in Epilepsy (SUDEP), and other seizure-related causes such as drowning and other accidents. We didn't know.

We are now deeply intimate with all that epilepsy is and the devastating effects it can have on individuals and families. When we hear stories of our friends or those outside of our circle whose children are in the hospital because of uncontrolled seizures, our hearts break because we have been there and are all too familiar with the intense feelings of helplessness and isolation. There are many different levels of severity in epilepsy and we have seen the worst.

We have no idea what is like to have twins that run and jump, ride bikes or play dress up together. We're not sure how it feels to go to Disney or a restaurant or a movie as a family without worrying if it is too loud or if we brought the right medications. The last time the four of us flew on a plane as a family was nine years ago when we traveled back from Boston Children’s Hospital. The girls were five months old and Livy had already been to three hospitals. Life is full of surprises and we suppose that when each of us gets up in the morning, we never really know how our lives will change. 

What we do know is that we were given an incredible gift that has inspired our family to do something special and that we will not let epilepsy beat us. What we do know is if people across the country work as one, if we speak with a unified voice, we can make significant progress toward finding a cure. What we do know is that we will fight for the millions of epilepsy warriors and their families who desperately need relief from the disorder. What we do know is that our family is ready to make a stand and show that hope is stronger than epilepsy.

If you know someone with epilepsy, please share this blog and video with them. We want them to know that they are not alone and that our family will continue to do all we can to spread awareness and raise funding to find a cure. To learn more about how you too can make a stand against epilepsy, please visit our Lemonade for Livy page. The official weekend is July 25 - 27. We are trying to turn the entire country purple.

Hope Is Freedom
What Our Kids Teach Us

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Comments 8

Guest - April corvin on Friday, 27 June 2014 07:01

Thanks for the share your blog, my son has epilepsy and started to have seizures at 15 months old. He is now 10 and we are looking at possible brain surgery at the children's hospital of Philadelphia. He has been on about 8 different meds over the years and he is still having seizures.

Thanks for the share your blog, my son has epilepsy and started to have seizures at 15 months old. He is now 10 and we are looking at possible brain surgery at the children's hospital of Philadelphia. He has been on about 8 different meds over the years and he is still having seizures.
Guest - Sandy @ Being Content Where We Are on Friday, 27 June 2014 07:07

My son is 5 years old and he started having seizures at 14 months old. He is finally on a medication that somewhat controls his seizures. Thank you for sharing your story. I found you at the Love that Max link up but will now be following along. Praying that today is a great day for your family.

My son is 5 years old and he started having seizures at 14 months old. He is finally on a medication that somewhat controls his seizures. Thank you for sharing your story. I found you at the Love that Max link up but will now be following along. Praying that today is a great day for your family.
Guest - Carol Lee on Friday, 27 June 2014 20:31

I didn't know all this either. Love you lots!

I didn't know all this either. Love you lots!
Guest - Anita Morrison @ Grace For Parents on Saturday, 28 June 2014 12:37

Thank you for sharing about epilepsy. My younger sister has suffered with seizures since birth. She was born in the 1960's and I have seen the effect that lifelong seizures have had on her. She is on high doses of multiple medications. Thank you for all you and your family do to raise awareness of epilepsy and to help find cure. I am always interested in stories on the news about different things people try to control seizures. I read recently about a family in England that put their child on a ketogenic diet to control his seizures. I also read about the use of marijuana oil in controlling seizures. As a sibling of a person with special needs and seizures, I would do anything to help her. Please keep writing and sharing your inspiring story.

Thank you for sharing about epilepsy. My younger sister has suffered with seizures since birth. She was born in the 1960's and I have seen the effect that lifelong seizures have had on her. She is on high doses of multiple medications. Thank you for all you and your family do to raise awareness of epilepsy and to help find cure. I am always interested in stories on the news about different things people try to control seizures. I read recently about a family in England that put their child on a ketogenic diet to control his seizures. I also read about the use of marijuana oil in controlling seizures. As a sibling of a person with special needs and seizures, I would do anything to help her. Please keep writing and sharing your inspiring story.
Guest - kim park on Thursday, 13 July 2017 02:06

THANKS TO DR EWOIG FOR CURING MY SON
My son has partial epilepsy for the past 18 years. Dr's have tried various means but he has seizures almost every month. The first epileptic occurred when he was five years old. i took him to a specialist who subscribed anti-epileptic medication. From then on he had to take four capsules per day, but most of the time he had seizures until I got to know about Dr.ewoig product to cure epilepsy. we order for the product, now i can tell you my son is now living a better life thanks to dr ewoig His herbal remedy is the only permanent solution to Seizure. You can always contact him through his email for more information(drewoig18@gmail.com)

THANKS TO DR EWOIG FOR CURING MY SON My son has partial epilepsy for the past 18 years. Dr's have tried various means but he has seizures almost every month. The first epileptic occurred when he was five years old. i took him to a specialist who subscribed anti-epileptic medication. From then on he had to take four capsules per day, but most of the time he had seizures until I got to know about Dr.ewoig product to cure epilepsy. we order for the product, now i can tell you my son is now living a better life thanks to dr ewoig His herbal remedy is the only permanent solution to Seizure. You can always contact him through his email for more information(drewoig18@gmail.com)
Guest - kim park on Thursday, 13 July 2017 02:06

THANKS TO DR EWOIG FOR CURING MY SON
My son has partial epilepsy for the past 18 years. Dr's have tried various means but he has seizures almost every month. The first epileptic occurred when he was five years old. i took him to a specialist who subscribed anti-epileptic medication. From then on he had to take four capsules per day, but most of the time he had seizures until I got to know about Dr.ewoig product to cure epilepsy. we order for the product, now i can tell you my son is now living a better life thanks to dr ewoig His herbal remedy is the only permanent solution to Seizure. You can always contact him through his email for more information(drewoig18@gmail.com)

THANKS TO DR EWOIG FOR CURING MY SON My son has partial epilepsy for the past 18 years. Dr's have tried various means but he has seizures almost every month. The first epileptic occurred when he was five years old. i took him to a specialist who subscribed anti-epileptic medication. From then on he had to take four capsules per day, but most of the time he had seizures until I got to know about Dr.ewoig product to cure epilepsy. we order for the product, now i can tell you my son is now living a better life thanks to dr ewoig His herbal remedy is the only permanent solution to Seizure. You can always contact him through his email for more information(drewoig18@gmail.com)
Guest - sophie on Saturday, 19 August 2017 20:17

WOW ALL THANKS TO DR WILLIAMS I HAVE NEVER BELIEVE IN HERBAL REMEDIES.

I am Sophie from Canada, my son have been a patient of seizure . he do have the attack two to three times a week, which has really affected his education and his life., I had tried a lot of anti viral medicine prescribed to me by doctors over many years now; but I could not see any improvements in my son's symptoms. One day while going through the internet ,
i got to know about this great Herbal Doctor who uses his herbal remedies in curing people from epilepsy,quickly i
contacted him and he he made me to know that the medication is a permanent cure, so i was interested,and he prepared a herbal medication for my son, which i received and he used it as instructed by dr williams. After two months the
improvement were very visible. the sleepiness and the abnormal behavior stopped, my son is so full of life now and there
no more no sign of seizure in him again. Am One of the happiest woman on earth since my son was cured from the problem of seizure,which he has been having for eight years now,
I would recommend this to all my friends,families,around the globe suffering from epilepsy.you can contact him through
his email on for advice and for his product,this is his email: doctorwilliams506@gmail.com , THANKS TO YOU ONCE AGAIN DR WILLIAMS

WOW ALL THANKS TO DR WILLIAMS I HAVE NEVER BELIEVE IN HERBAL REMEDIES. I am Sophie from Canada, my son have been a patient of seizure . he do have the attack two to three times a week, which has really affected his education and his life., I had tried a lot of anti viral medicine prescribed to me by doctors over many years now; but I could not see any improvements in my son's symptoms. One day while going through the internet , i got to know about this great Herbal Doctor who uses his herbal remedies in curing people from epilepsy,quickly i contacted him and he he made me to know that the medication is a permanent cure, so i was interested,and he prepared a herbal medication for my son, which i received and he used it as instructed by dr williams. After two months the improvement were very visible. the sleepiness and the abnormal behavior stopped, my son is so full of life now and there no more no sign of seizure in him again. Am One of the happiest woman on earth since my son was cured from the problem of seizure,which he has been having for eight years now, I would recommend this to all my friends,families,around the globe suffering from epilepsy.you can contact him through his email on for advice and for his product,this is his email: doctorwilliams506@gmail.com , THANKS TO YOU ONCE AGAIN DR WILLIAMS
Guest - nancy on Wednesday, 25 October 2017 08:15

My son started having seizures he had his first seizure at 6 year within 12 hours We spent 6 days in the hospital where different doctors looking at different things couldn’t agree on why he suffered a seizure… He has had genetic tests including a muscle biopsy. I used to wonder why my son were getting so many vaccinations shots at such a young age, Still the doctors wouldn’t admit it was the vaccination shots. After his 2nd seizure I wouldn’t allow my son to be vaccinated anymore but I believe the damage is done. It was during a casual conversation with a friend that I learned about Doctor Lawson Bryan i was so glad to know him on how his herbal product work, I contacted Lawson and explain everything to him and make purchase of his product. few days later i received the herbal medicine my son used it for 3 mouths i notice improvement in less than a month my son was totally cured of seizure now he have not experience any sign of seizure. Contact doctor Lawson Bryan on this + 1 (979) 475-5130 or e-mail dr.lawson52@gmail.com.;)

My son started having seizures he had his first seizure at 6 year within 12 hours We spent 6 days in the hospital where different doctors looking at different things couldn’t agree on why he suffered a seizure… He has had genetic tests including a muscle biopsy. I used to wonder why my son were getting so many vaccinations shots at such a young age, Still the doctors wouldn’t admit it was the vaccination shots. After his 2nd seizure I wouldn’t allow my son to be vaccinated anymore but I believe the damage is done. It was during a casual conversation with a friend that I learned about Doctor Lawson Bryan i was so glad to know him on how his herbal product work, I contacted Lawson and explain everything to him and make purchase of his product. few days later i received the herbal medicine my son used it for 3 mouths i notice improvement in less than a month my son was totally cured of seizure now he have not experience any sign of seizure. Contact doctor Lawson Bryan on this + 1 (979) 475-5130 or e-mail dr.lawson52@gmail.com.;)
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