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Livy's Hope Blog

Welcome to the Livy's Hope Blog!
Jonathan Scheinman

Lemonade For Livy 2014 Was A Success!

We would like to thank everyone for participating in and supporting Lemonade for Livy! The excitement leading up to the weekend and the turning of the last handful of states purple was amazing. There was incredible energy throughout the country during Lemonade for Livy as we came together to spread epilepsy awareness and raise money for research.

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Allison Scheinman

I Have a Confession To Make

I had to take a moment out of this exciting, crazy momentum and just stop and confess.

At the beginning of this "Lemonade for Livy" campaign, I was the skeptic. Jon had mentioned in a previous blog that I had lost some of the positive beliefs that I once had. These past nine years have been tough on me and my soul. I was always the optimist and could always find the good in every situation. I wish I could say that I still felt that positive flow of energy every day, but that part of me has been hidden for some time.

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Jonathan Scheinman

Will You Stand With Us?

This past week, we sent out an email to family and friends. I thought it was important to share since many of you have been following our story from the very beginning. For years, we have watched Livy struggle with epilepsy. We have shed many tears and experienced tremendous heartache as she courageously fought through episode after episode and multiple surgeries. In the end, what Livy needs is a cure.

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Allison Scheinman

Livy's Hope Kids Crew Fundraiser

The kids from the Livy's Hope Kids Crew are raising money to help fund 80 gifts they will be putting together on April 26th to give to the moms staying at the Ronald McDonald House Charities of Tampa Bay on Mother's Day. 

Please consider making a donation to help fund their wonderful efforts! Each gift bag will contain items such as a handmade gift, body lotion, lip balm, a manicure set, body spray and a delicious cake pop by Painted & Sprinkled!

The more the kids raise, the more they will be able to add to the gift bags. With your help, they will be able to show these moms that they are cared about as their children are in the hospital.

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Allison Scheinman

This Ending Is Only The Beginning

This Ending Is Only The Beginning

What an amazing year it has been! We never could have imagined we would have been able to accomplish all that we did in one year's time. The last few months were particularly busy and seemed to go by in a flash. Livy's Hope has made such a difference in our lives and we hope in the lives of others as well. I have a feeling this is only the beginning of something bigger and more inspirational.

We are excited to share with you that our video "I Am Hope" for the Livy's Hope For A Cure campaign has been chosen as a finalist for the WEDU Be More Awards! The ceremony will be held on February 20th in Tampa. This is a wonderful honor and we are so proud to be among the finalists.

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Allison Scheinman

Final Days for Holiday Shopping at Livy's Hope!

Final Days for Holiday Shopping at Livy's Hope!

Are you still looking for that special something to give? Choose from a variety of bracelets by Hailey, a Livy's Hope ornament, Art by Hailey stationary or a Livy's Hope Kitty. Any gift you give is a gift that keeps giving. All proceeds benefit the programs of Livy's Hope.

Tomorrow, December 19th is the last day to order gifts from the Livy's Hope shop in order to have them arrive in time for Christmas!

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Allison Scheinman

"Believe In Hope" Original Painting - Art by Hailey

"Believe In Hope" Original Painting - Art by Hailey

"Believe In Hope"

Hailey has created this festive holiday painting to raise money for Livy's Hope!

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Allison Scheinman

Art Auction by Hailey "Summer Breeze"

Art Auction by Hailey "Summer Breeze"

August is the month of AUCTIONS for Livy's Hope For A Cure! We are asking people to create something original or find something they no longer want and auction it on eBay or sell it at a yard sale. Then, donate the money to help fund epilepsy research. 

Hailey has created this beautiful landscape of the Gulf of Mexico viewed from Dunedin, FL. The bidding begins today and ends in three days. Don't miss your chance to win this artwork and at the same time help the Epilepsy Foundation to fund research for a cure! Click here to visit the auction.

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Allison Scheinman

Hailey's HOPE Necklace - Ending Soon!

Hailey's HOPE Necklace - Ending Soon!

There is just over one hour left to bid on Hailey's latest jewelry design (Auction ends at 3:00 PM EST). Click HERE to BID NOW. All proceeds benefit Livy's Hope. Thank you and have fun bidding!

"HOPE" Necklace

  • Black Beads
  • Silver Spacers
  • "HOPE" Letter Charms
  • 19" beaded on wire
  • Silver Magnetic Closure
  • Designed by "Art by Hailey" - Hailey is Livy's twin sister
  • FREE SHIPPING
  • www.livyshope.com
  • Proceeds benefit "Livy's Hope"
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Allison Scheinman

You're Kidding Me...Right?

I looked down at Hailey's face as she peered up to me with very serious eyes. Her point was clear. We were going to raise $1 million dollars for the Epilepsy Foundation. "You're kidding me...right?" I asked. She wasn't kidding and she was going to make me believe it. Jon and Hailey asked, "Can we count you in?"

A lot of people are going to think we're crazy. I know this because I thought Hailey and Jon were crazy when they told me what we were going to do. At her age, she does not understand the concept of $1 million dollars. But Jon, he knew what he was getting us into. He and Hailey always talk about grand schemes and outrageous ideas. They talk about inventions, business ideas, ways to combine foods. They are dreamers. They are believers. They are the kind of people that think anything is possible.

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Allison Scheinman
That is wonderful that Nathan has been inspired to do a fundraiser! Kids are so amazing. They have so much strength and will and a... Read More
Thursday, 13 June 2013 09:30
Jonathan Scheinman

Livy's Hope For A Cure

It’s 8:00 on the morning of December 15, 2004. I stand with my arms braced against the sink staring into the mirror at myself in the men’s bathroom at All Children’s Hospital in St. Petersburg. I am haggard with red eyes and a dazed, confused look about me. This should be the happiest day of my life. I am a first time dad. My wife, Allison, gave birth to our twin daughters, Hailey and Olivia (Livy) only 4 hours earlier. Instead, tears of grief, not joy, stream down my cheeks. I have just witnessed Olivia having her first grand mal seizure in the neonatal intensive care unit. She is only hours into this world. We would later be told by a doctor that she may not live to be a year old.

After a month at All Children’s, we traveled to Boston Children’s Hospital to see a specialist. We had only been there a short time when we were asked if we had considered a DNR (do not resuscitate). Livy’s condition worsened so we baptized her in the hospital in case she never made it home. The doctors gave us a diagnosis of generalized cortical dysplasia (a brain malformation). Remarkably, three months later and with Livy subdued on five anti-seizure medications, we flew back to Florida to All Children’s while we waited for a room to become available at the Woodside Hospice House of Pinellas. We were completely unprepared both physically and emotionally to care for such a medically complicated child.

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Allison Scheinman

Stella & Dot Fundraiser for Livy's Hope

Stella & Dot Fundraiser for Livy's Hope

We are excited to announce a fun and fashionable fundraiser for Livy's Hope!

Laura Slook, a Stella & Dot Independent Stylist located in Massachusetts, has chosen to support Livy’s Hope due to the "awe inspiring story of courage and determination that one family has dedicated their lives to."

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Allison Scheinman

A Special Day...A Fun Contest and More!

A Special Day...A Fun Contest and More!

Tomorrow, March 26, is Purple Day! This day was started to support epilepsy awareness worldwide.

Would you please consider wearing purple in honor of this day and for those like Livy that have epilepsy? We are offering a special contest too! Take a photo of you and your friends or family wearing purple and share it on the Livy's Hope Facebook page. Hailey and Livy will choose their favorite photo and we will send you a set of Hailey's "Art by Hailey" notecards!

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Allison Scheinman

"Jewels of Hope" Bracelet Collection

"Jewels of Hope" Bracelet Collection

Livy's Hope is now offering the "Jewels of Hope" collection of bracelets for purchase in the shop!

Through your purchase of these bracelets, Livy's Hope can continue donating other "Jewels of Hope" bracelets to girls in the hospital. Sometimes it is the small things that can make all the difference. We look forward to continuing this project and to create others which will allow us to fulfill our mission.

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Allison Scheinman

One Hour Left - Hailey's "Love's Blue Wish" Bracelet!

One Hour Left - Hailey's "Love's Blue Wish" Bracelet!

One of Hailey's latest creations "Love's Blue Wish" is only up for auction for one more hour. If you are interested in bidding, please click the link below to take you to her auction. She will be eagerly waiting to see who wins!

Thank you for supporting Livy's Hope!

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Allison Scheinman

"Love The Beach" Bracelet Auction - Art by Hailey

"Love The Beach" Bracelet Auction - Art by Hailey

Hailey is offering an eBay auction on one of her bracelets from Art by Hailey!

"Love The Beach" is available for bidding now at the link below. All proceeds will benefit Livy's Hope.

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Jonathan Scheinman

Life Is Sweet

Life Is Sweet

Strawberry buttercream, chocolate filled chocolate cake topped with a chocolate butterfly. Life is certainly sweet when filled with such a scrumptious dessert. That was all it took to bring hundreds of people out to support Livy's Hope. The fundraiser at The Cake Bar in Franklin, MA a couple of weeks ago was remarkable. Our friend Tracie and her staff worked tirelessly to keep the cases full of mouthwatering cupcakes. In the end, 2,417 cupcakes were sold! The money raised will help to further our mission of supporting children with medical needs and their families.

I am still amazed by what people can accomplish when they come together in support of a common goal. The feeling of doing something good for others is both contagious and addictive. A small act of kindness is all it takes to change someone's life.

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Allison Scheinman

"Livy's Hope Cupcake" at The Cake Bar

"Livy's Hope Cupcake" at The Cake Bar

We are so excited to tell you about an amazing event that will be taking place next week. We were approached by a very dear friend, Tracie Turinese, owner of The Cake Bar in Franklin, MA about doing an event to raise money for Livy's Hope! She asked if Hailey would design a cupcake in honor of Olivia. As you can imagine, Hailey was thrilled and got right to work coming up with an idea. The "Livy's Hope Cupcake" will be offered next weekend January 18, 19 and 20 at the bakery and all proceeds will be donated to Livy's Hope. Needless to say, our family is so thankful and excited for this beautiful act of kindness. We have all tasted the amazing cupcakes from this bakery in our hometown. Tracie is a gold medal winner of the Food Network Challenge!

The "Livy's Hope Cupcake" is a moist chocolate cake stuffed with rich chocolate ganache, smothered in strawberry buttercream, and garnished with a very special butterfly. Hailey felt it was very important that the colors matched the "Livy's Hope" logo and that the very important butterfly, resembling hope, be on each cupcake.

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Allison Scheinman

A Little Holiday Poem

A Little Holiday Poem

'Twas the week before Christmas and all through our place

There are streamers and balloons and signs of outer space.

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Allison Scheinman

Holiday Hope

Holiday Hope

It is always amazing how quickly the holidays creep up on us. We have been very busy getting ready not only for Christmas but for the girls' eight birthday on Saturday! It's unbelievable that at this time eight years ago, Jon and I were eagerly awaiting the arrival of our twin girls. It was a time of excitement and nerves. Life took an interesting turn that year and we were given two amazing gifts. Each year we are reminded how lucky we are and how far we have all come as a family.

Livy's Hope is very special to us and we believe in all that it stands for. We love sharing our story including all the ups and downs. It is a part of our lives that keeps us inspired and motivated to stay positive. Thank you all for being here with us for the ride.

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Connect today and join us on
our journey of hope.

 

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